The National Eczema Association improves the health and quality of life for individuals with eczema through research, support and education.
The National Eczema Association is a national, patient-oriented organization which is governed by a Board of Directors and guided by a Scientific Advisory Committee comprised of physicians and scientists who donate their time and expertise. NEA is entirely supported through individual and corporate contributions and is a 501(c)(3) tax-exempt organization. NEA receives no federal grants or sub grants, or federal contracts or subcontracts.
The National Eczema Association provides thousands of people with eczema information and support by telephone, email and the website. Specific NEA support programs include:
- NEA produces an award-winning quarterly newsletter called The Advocate.
- NEA provides a School Pack for parents and educators to ease the school experience for children with eczema.
- NEA conducts an bi-annual Eczema Patient Conference, changing the lives of hundreds of people each year.
- NEA conducts an annual Children’s Conference Camp during the Eczema Patient Conference, which often results in greater self-esteem and self-image for children with eczema.
Public Awareness and Education
The National Eczema Association creates an awareness of the heavy burden of eczema on individuals, their families, and society. Specific NEA awareness programs include:
- NEA declared October as National Eczema Awareness Month to promote education on eczema to the general public.
- NEA educates medical professionals at key meetings of the Academy of Dermatology (AAD), the Dermatology Nurses Association (DNA), The American Academy of Allergy, Asthma, and Immunology (AAAAI), the American Academy of Pediatrics (AAP), to name a few.
- The Life Improvement for Eczema (L!FE) program created several tools and materials for patients and physicians, including a Quality of Life assessment tool to be used during office visits.
- The Images of Isolation program documented and communicates the toll eczema takes on the quality of life of those with the disease and their families.
The National Eczema Association is the catalyst for, and often initiates, key eczema research. Since 2004, over $250,000 in medical research grants have been awarded. The research topics include:
- Mechanisms of Itch
- Skin Barrier Function and Staph Infections
- Genome-wide Analysis of Atopic Dermatitis
- Alopecia Areata and Atopic Dermatitis HLA alleles and cytokine profiles
- Role of the Skin Barrier in the Development and Prevention of Atopic Dermatitis
- Control of Itch by the Innate Immune System