At the National Eczema Association (NEA), our employees are at the heart of our mission. We are the driving force for an eczema community fueled by knowledge, strengthened through collective action and propelled by the promise for a better future.
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Founded in 1988, the National Eczema Association (NEA) is a 501(c)(3) nonprofit and the largest patient advocacy organization serving the over 31 million Americans who live with eczema and those who care for them. NEA provides programs and resources to elevate the diverse lived experience of eczema, and help patients and caregivers understand their disease, actively engage in their care, find strength in one another – and improve their lives. Additionally, NEA advances critical eczema research and partners with key stakeholders to ensure the patient voice is represented and valued in education, care and treatment decision making. The eczema community is at an exciting juncture, with increased recognition of the seriousness and burden of eczema and a surge in scientific interest and development of new treatments. Bolstered by NEA’s strategic plan, Blueprint 2025, we are driving toward the ultimate vision: a world without eczema.
Associate Director, Community Research
Reporting to the Senior Vice President, Scientific & Clinical Affairs, the Associate Director, Community Research will coordinate and oversee efforts to engage the NEA community via discreet and longitudinal real-world data collection mechanisms to ensure the insights, experiences, and preferences of eczema patients and caregivers contribute to a broader understanding of this serious skin disease and influence optimal care, treatment, and outcomes. We are seeking a qualified individual to manage the development and execution of NEA’s survey research program and analyze findings for presentation and publication in varying formats in support of NEA’s mission.
The Associate Director, Community Research will work closely with the Research, Communications, Advocacy, and Programs staff in the identification of research and knowledge gaps, as well as the strategic prioritization and analysis of data collection efforts.
This position is full-time (40 hours/week) and is currently remote. When Marin County COVID-19 safety protocols allow, this position can be in our Novato office. Fully remote home-based locations may be considered for exceptional candidates.
• Implement a scientifically sound survey research program to foster short-and long-term patient-centered data collection needs, closing of research/knowledge gaps, and assessments of NEA programmatic efforts.
• Evaluate primary research on burden of disease, economic impacts, use of therapies and outcomes, access, and other clinical care issues, etc., and identify data elements that should form the basis for survey trend analysis.
• Determine focus, details and timelines of survey projects including procedures, study populations, design of survey instruments and materials, planned analysis framework including statistical assessments, and output reports/manuscripts.
• Oversee programming and technical support for prioritized surveys. Analyze survey data; prepare and present summaries, as well as individual tables/figures as needed.
• Contribute authorship to abstracts, posters, and publications derived from survey findings. Present at scientific meetings as appropriate.
• Monitor and evaluate individual survey and overall survey program progress and performance.
• Create a query-able survey database for all NEA surveys; develop policies and procedures for external use of NEA survey data. Oversee policy implementation supporting engagement of the NEA community in non-NEA real-world survey research and related opportunities.
• Contribute insights and support as needed for NEA initiatives to advance real world data collection through patient engagement in surveys. Engage with the NEA Scientific Advisory Committee and other thought leaders in support of real-world data collection objectives. Represent NEA in external advisory groups as assigned.
• Collaborate with Research and Programs colleagues on activities and growth of the NEA Research Ambassadors program.
Direct Reports: 2
• Science & Research Manager
• NEA Research Advisor (contracted)
• Bachelor’s degree in a health-related, social, or behavioral science required, advanced degree preferred.
• 5-plus years of professional experience in research, medical, or educational settings with emphasis in survey development and execution including IRB considerations, statistical analysis, developing, working with, and reporting from relational databases.
• Experience gathering the patient or caregiver perspective, or experience ascertaining barriers affecting patient or caregiver outcomes strongly preferred.
• Excellent analytical and critical thinking skills. Effective verbal, non-verbal, and written communication methods as well as reflective listening skills.
• Proven ability to work productively with cross-functional teams of varying levels of staff seniority, and articulate scientific concepts/data to multiple audiences.
• Strong organizational and time management skills with exceptional attention to detail.
• Experienced professional who can work independently without close oversight, take initiative, and manage multiple tasks and projects with differing, and at times changing, priorities and timelines.
• Periodic travel required.
The National Eczema Association offers an attractive benefits package to the qualified candidate:
• Competitive salary, dependent on experience
• Medical and Dental benefits
• Life Insurance
• Employer paid pension plan
• Employee optional 401K plan
• Optional Flexible Spending Plan
• Other standard organization benefits
Interested applicants should submit their resume and cover letter. Please include in the cover letter an explanation of why you believe you are a fit for this position. Submissions without the requested information will not be considered.