Scientific studies and patient testimonials have firmly demonstrated that atopic dermatitis (AD) is much more than a skin disease, with impacts that can affect virtually every aspect of life. In addition to these AD-specific impacts…
Published On: Jul 19, 2016
Last Updated On: Jul 15, 2021
People living with atopic dermatitis (AD), the most common and chronic form of eczema, know first-hand the burden atopic dermatitis has on both individuals and families. The impacts reach far beyond the serious effects of the disease symptoms such as itch, pain, and inflammation –they also include quality of life issues such as sleep disturbance, economic burden, social and psychological issues, and decreased productivity at work or school. In order to effectively relay the impact AD has on you and your family to providers, insurers and others, we need to know what research has already documented, and where more information is needed to fill in the research gaps.
In 2015, NEA awarded Dr. Aaron Drucker, Assistant Professor, Department of Dermatology at Brown University, a NEA Burden of Atopic Dermatitis grant to do just that.
“People with eczema and atopic dermatitis deserve care that will empower them to better manage their condition to improve their quality of life,” said Dr. Drucker. “Not only is this comprehensive audit important to help more people understand what we do know, but also because it will highlight research we need to do that will have a direct impact on patient care. I have great hope that as atopic dermatitis gets more attention, there will be more therapies than ever before that will be safe and effective.”
In 2016, the first article based on the NEA Burden of Atopic Dermatitis was published in JAMA Dermatology, “Research Gaps in Quality of Life and Economic Burden of Atopic Dermatitis.” Key research gaps identified include:
These findings are being put into action:
This year, NEA’s Scientific Advisory Committee and Board of Directors prioritized funding the three key research gaps listed above through our Research Grant Program. A request for proposals has been released, and we expect reports detailing atopic dermatitis impact findings will be released in 2018.
We’ll also be sharing more news about the 2015 Burden of Atopic Dermatitis audit as additional articles based on Dr. Drucker’s research are published. This new information, alongside member surveys asking you to share how atopic dermatitis directly impacts your life, will greatly increase our shared understanding about the burden of eczema and AD.
Together, research about atopic dermatitis and exactly how it affects you in your day to day life will allow NEA to drive increased funding for research, new treatments, and a wide array of initiatives to improve you and your family’s health and quality of life.