According to a new Understand AD survey of 505 American adults (18 years of age and older) who self-reported being diagnosed with moderate-to-severe atopic dermatitis, results show that the disease goes beyond physical signs and symptoms and negatively impacts their lives socially and psychologically. The results, unveiled during Eczema Awareness Month, show that a majority of respondents are making lifestyle modifications because of the disease, and that some have made career choices that limit face-to-face interactions with others because of their atopic dermatitis.
Out of the 505 Americans with moderate-to-severe atopic dermatitis who responded to the Understand AD survey:
- 53 percent reported that their disease has negatively impacted their daily lives.
- 82 percent have made lifestyle modifications in order to manage their disease, such as choosing a career that limits in-person interaction with other people.
- 55 percent reported that their confidence was negatively impacted due to their disease.
- 49 percent say their sleep has been negatively impacted by the disease, moderately or significantly
- 23 percent of people feel depressed and 28 percent feel anxious due to their atopic dermatitis
- 20 percent report that their atopic dermatitis has impacted their ability to maintain employment
As you may know, atopic dermatitis is characterized by rashes and can include intense itching, skin dryness, cracking, redness, crusting and oozing[i] The itching and pain associated with the disease can make people feel self-conscious about their appearance and frustrated by the continuous discomfort. Having atopic dermatitis can also be isolating, as people may feel embarrassed by their skin lesions or may be in so much pain that they do not want to interact with other people, especially during a flare-up. As people living with moderate-to-severe atopic dermatitis cope with the impact of the disease on their daily lives, many find themselves avoiding things they love to do, such as physical activities and social interactions.
“Unfortunately, there’s a misperception that atopic dermatitis is just a ‘skin condition’ that people can deal with on their own, but in reality, it’s an immunological disease that has a huge impact on patients’ lives. We want people living with this disease to know that they’re not alone and that we’re committed to advocating for better care and treatments, providing support and raising the level of awareness about this serious, and often overlooked, disease.” says Julie Block, NEA President and CEO.
The survey is part of the national awareness campaign Understand AD and was conducted online by Harris Poll on behalf of Sanofi Genzyme and Regeneron Pharmaceuticals, Inc. Understand AD is a Sanofi Genzyme and Regeneron program in collaboration with the National Eczema Association and the Dermatology Nurses’ Association. The National Eczema Association (NEA) is supporting the Understand AD campaign to raise awareness and understanding of atopic dermatitis in collaboration with Elizabeth Falkner, the Dermatology Nurses’ Association, Regeneron Pharmaceuticals, Inc., and Sanofi Genzyme.
Visit www.UnderstandAD.com to learn more about the survey results, about moderate-to-severe atopic dermatitis, get connected with advocates, hear from award-winning chef, media personality and restaurateur Elizabeth Falkner who has lived with atopic dermatitis for the past 20 years, and from others living with the disease.
[i] http://www.mountsinai.org/patient-care/health-library/diseases-and-conditions/atopic-dermatitis#risk Accessed: September 27, 2016.