Eczema Out Loud: The Impact of Sharing Your Eczema Story
Eczema Out Loud
By National Eczema Association
Published On: Jul 30, 2021
Last Updated On: May 15, 2023
On this episode of Eczema Out Loud, we’ll be exploring the impact of the patient voice. Jim and Megan, two members of the National Eczema Association’s Ambassador program, will be telling us how impactful sharing your story can be, not only for the future of the greater eczema community, but also for healing yourself.
We’re also joined by the director of patient advocacy at Regeneron, Ilana Tabak, and Dr. Eric Simpson, the Frances J. Storrs, M.D. Medical Dermatology Professor at Oregon Health and Science University. Ilana and Dr. Simpson will share with us how the voice of the patient has influenced their work and changed the direction of their fields and industries.
"I mean, I'm always itchy." Madalyn has chronic eczema, so it took some time for her to realize that the symptoms she was experiencing were not "just a really bad flare." She joins this episode to tell the story of how she found out she had a staph infection and what she had to do to treat it.
Dr. Lisa Swanson joins us to talk about why people with eczema are more prone to infections, the types of infections people with eczema get, what can be done to prevent infections and what to do if you think you might be getting a skin infection.
Lauren Hewett and Sarah Harris talk about what it means for people with eczema to treat themselves in their personal lives and what it will mean for them to be treated at Eczema Expo.
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