Eczema Counts Wraps Up


By National Eczema Association

Published On: Feb 20, 2024

Last Updated On: Feb 20, 2024

Eczema Counts, an innovative project that was run as a partnership between the National Eczema Association (NEA) and the Pediatric Dermatology Research Alliance (PeDRA), concluded in early 2024. The goal of Eczema Counts was to educate and connect eczema patients and researchers with the goal of advancing patient centered outcomes research (PCOR) and comparative effectiveness research (CER) in the field of pediatric eczema. The project was funded by an Engagement Award from the Patient-Centered Outcomes Research Institute (PCORI).

Online games

Eczema Counts included two phases — the first was a series of three online games that led more than 300 participants through a series of challenges in pursuit of valuable knowledge while also having the chance to win some great prizes. Along the way, participants completed more than 240 game challenges and earned dozens of prizes. The top two players who earned the most overall points in the researcher and patient categories, respectively, received a PlayStation 5 game console or gift card of equivalent value.

In-person meeting

The second phase of Eczema Counts focused on in-person engagement and identifying a high-priority patient-centered research question that can inform an actual project in the near future. A group of patients convened during a breakout session at NEA’s Eczema Expo in June 2023 to generate a list of high-priority patient-centered research questions, which went on to be prioritized and refined for implementation five months later at the PeDRA Annual Conference in November.   

Eczema Counts project a success

Through Eczema Counts, NEA and PeDRA demonstrated the power of gamification to educate and equip a diverse audience to engage in patient centered outcomes research and comparative effectiveness research to help bring high-priority eczema research questions forward.

This project also established a template for education and engagement that can be used by other patient and researcher communities to make similar progress with other diseases.

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