Research That Focuses on the Lived Experience of Eczema

The National Eczema Association (NEA) has its own research team dedicated to studying eczema. Our in-house team of researchers are actively conducting studies to gather insights into the range of physical, emotional and financial burdens of eczema, as well the changing eczema care and treatment experience.

Through our research, we strive to address gaps in understanding of the lived experience of eczema, as well as improve the quality of life of those living with eczema.

The primary way NEA conducts research is through online surveys with eczema patients and caregivers. These surveys allow us to collect information from a diverse group of participants and explore critical aspects of the eczema experience, such as:

  • Symptoms and quality of life
  • Financial impacts
  • Care experiences and preferences
  • Treatment needs and preferences
  • Mental health

Our Study Results

NEA’s study results are published in top medical journals in the dermatology and healthcare field. So far, we have published more than 25 papers in various medical journals. Our scientific papers are published exclusively in journals that allow free access to papers and articles. By publishing in these types of journals, our work can be shared with the public on a larger scale to affect greater change.

As an organization, NEA uses our in-house research results to advocate for better eczema care with policymakers, healthcare providers and other researchers. Our goal is to improve clinical care for eczema, inform healthcare policies and fuel further research.

Learn more about each study we have conducted, our findings, plus view journal publications:

Atopic dermatitis care experience study

Atopic dermatitis prescription treatment study

Eczema action plan study

Eczema community perception of clinical trials study

Flare definition study

Mental health study

Out-of-pocket expenses for eczema study

Patient preferences study

Prescription treatment access survey

Seborrheic dermatitis, dyshidrotic eczema and hand eczema (SHED) study

Shared decision making study

Transition of eczema care study


Participate in a NEA Eczema Study

NEA conducts a few studies each year. Topics and participant criteria vary depending on the study.