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Study on Eczema Community Perception of Clinical Trials

Examining what motivates or prevents patients and caregivers from participating in eczema clinical trials to improve future trial design and recruitment.

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The National Eczema Association (NEA) improves the health and quality of life for people affected by eczema, and empowers those who advocate, support and deliver care.

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In 2020, the research team at the National Eczema Association (NEA) conducted an online survey to learn about the eczema patient and caregiver community’s awareness of, experience with and motivations/barriers to participating in eczema clinical trials. A fuller understanding of eczema clinical trial awareness, attitudes and participation factors could be used to inform eczema clinical trial design, education and recruitment — ultimately changing patients’ future experiences in eczema clinical trials.

Based on the survey responses, the NEA research team found that reducing barriers to participation and making an effort to improve clinical trial awareness and literacy may lead to increased participation in eczema clinical trials.


Research Publications

Key findings from this research were published in:

  • Acta Dermato-venereologica, “Factors associated with eczema clinical trial awareness, interest, and participation in adults”
  • Skin Health and Disease, “Patient and caregiver motivators and barriers to eczema clinical trial participation: Analysis of survey data”
  • Contemporary Clinical Trials Communications, “Factors related to eczema clinical trial participation among adult patients and caregivers”

Related NEA Articles

Learn more about this NEA study in the articles below:

  • New NEA Research: What Factors Influence Clinical Trial Participation for Eczema Patients
  • New Insights: Understanding Clinical Trial Participation for Eczema

Survey One-Pager

Download the clinical trial participation one-pager